
I hope by just writing this blog I bring awareness of Crohn’s disease IBD (irritable bowel disease) which is an auto immune disease that affects the immune system by over reacting causing ulcers anywhere between your mouth down your digestive tract to your anus. Symptoms include diarrhea,vomiting, constipation, fatigue, weight gain/loss, loss of appetite, mucous or blood in your stools, anemia, anxiety, depression, accidents, joint pain, eye problems and eating disorders.
I always had digestive issues since a small child, it was always put down to Food intolerance and stress. But looking back the symptoms were there. Back in 2020 my body was suffering from alot of stress and grief which I believe triggered a big flare up which led to my diagnosis in 2021. I had always just dealt with my symptoms myself but after dropping alot of weight in a small amount of time I decided to reach for help, when I told my Dr about my symptoms he ordered a stool sample which came back with high inflammation levels which indicates inflammation someone in my digestive system. from there I was referred to digestive diseases for some further diagnostic treatments.

To diagnose a digestive disease lots of tests and procedures have to be done, unfortunately the digestive tract isn’t easy to reach without being invasive.
Just to name a few tests I had multiple Colonoscopies and biopsies taken from my colon, I had an MRI dye test which showed inflammation in my small bowel then a endoscopy pill cam which you swallow and it records a video from your mouth to reach your small bowel.
The results came back from the pill cam showing ulcers scattered around my small bowel and it was then confirmed as Crohn’s disease.
After this I had lots more blood tests done this was to check I was healthy enough to start medication. these drugs are immunosuppressant which are widely used for other auto immune diseases and chemo therapy for cancer patients. It is used to calm your immune system down to stop it from attacking itself. So when you are put of these drugs your immune system is supressed making you at higher risk of flu, virus ,colds and infections.

Unfortunately with these drugs come side effects which can be nasty such as vomiting, migraines , joint pain, pancreatitis and skin cancer. You have blood tests done on the 2nd week, 4th week, 8th week and so on to make sure your body is tolerating the medicine.
I was told when I start I may feel like a have the flu for a couple of weeks.
Unfortunately for me I tried the 1st medication for 12 weeks and had terrible side affects, I had joint pains, migraines, my appetite was gone and my hair was falling out. Due to this they took my off the medicine.
I then went on to try different doses of the same medication with a combination of other drugs but my body was rejecting it and each time I got worse. The last medicine caused me to vomit and have extreme nausea I couldn’t get out my bed to wash or brush my teeth so I was taken off the medicine. At this current time I am waiting to start my 4th type of medication it’s a long journey for me to find the right treatment. For many they tolerate the medication well but unfortunately for some the side affects are strong. It’s a gamble the Dr have to make to find the right treatment for you.
Due to trying so many drugs and constantly feeling unwell my mental health has suffered, if your someone who is has just been diagnosed I’d advise seeking therapy to prepare you for your journey to help you be kind to yourself if treatments fail or find trying new things overwhelming.
Surround yourself with your friends and family and be open about your experience with it. Join a forum and find others who have the same disease as you so you can connect and ask questions.
I hope in the future to find a treatment right for me and come back stronger than ever.
In my next blog I will dive deeper into the affects IBD has on work, social life and relationship’s.



